Kidney Patient Guide

This may be of interest to some: The Patient and Public Involvement Programme and the NICE short guidelines team are looking for applications from patients and carers to sit on the group developing a clinical guideline on peritoneal dialysis for adults and children with severe chronic kidney disease...

Hi jman Totally agree as I said no patient should find themselves out of pocket for doing home therapy but the original post looked like suggesting more payments should be included because of choosing HT. I think that if this happened it could cause more problems. That said we won't improve the use ...

Hi Sorry for this but i seem to have put my reply in the wrong post of your 2 , so sorry. John PS - i don't think payments should be given to patients just for going on home therapy. Part of choosing the 'best' dialysis is choosing the one that works for you when you are in receipt of ALL the facts....

Hi You may want to have a read of this study from 2008 which can be found here: http://ndt.oxfordjournals.org/cgi/content/abstract/gfm870v1 Click on the Free full text tab to the top right to get the full report. It states the following costs per patient to the trusts for: Hosp HD £35,023 Sat HD £...

Hi i read about this, this morning and was going to leave a link on here too but jen got there first. I think it is a great idea, i've signed up and would love to get up there with a organ donation card so count me in Jen. I might set up my old dripstand up there as well to show off PD. I think Andy...

Hi Andy Thanks for the feedback, i was going to use KPG as an example. The lecture is at Bradford University and is for Renal Technologists. I was at a conference of theirs (http://www.artery.org.uk/site/ART/home) last October with RF and after speaking to them about my experiences with dialysis,ren...

Hi All

Hope you're keeping well. In about 2 weeks i will be giving a lecture at a local university on the following: The role of technology in improving QoL outcomes: The Renal Patients’ perspective

I have a number of ideas but would like to hear any thoughts you may have.

Rgds

John

Hi Keith

I've never been on any pred with my TX and have only used Tacro + MMF. 15 months post tx and my last eGFR was 85% and no no numbness at all.

Rgds

John

Well done Jen (& kidney) hope there's many more of these to come.

John

Hi Chris

What is your Hb level like? i found while on CAPD that i felt colder when mine started to drop. this could be a reason, but i would expect your team to flag this up if it had gone too low.

J

Hi All Well after meeting with the GP all is well again. It turns out the the major problem was my RU not keeping my GP up to date with my meds and blood results therefore he was getting a bit worried about the change from 3x500mg to 2x750mg. It seems that as he prescribes the meds it is he who has ...

Hi All Thanks for the coments, all useful as always. I've got a meeting with the GP today to go through a drug review, really need to find out why he has suddenly got a problem with the 250mg cap. I've been on it and he's been writing the scripts for the past 3 months so don't know why it has sprung...

Hi All Just want to pick the brains of some of you. After my tx last December and since i have been on 1500mg MMF daily. I first started with a 3x500mg routine but found taking the afternoon 500mg a pain because all my other meds were morning or night and i often ended up taking the afternoon one la...

Merry Christmas and a very Happy 2009 to you all

John

Good News....Well done, hope it all goes well for you.

john