Search found 440 matches
- Fri Mar 17, 2017 12:45 pm
- Forum: The KPG Forum
- Topic: ADVICE FOR HOSPITAL DEPARTMENT
- Replies: 4
- Views: 11954
Re: ADVICE FOR HOSPITAL DEPARTMENT
Hi. Its a long time since Ive posted. I was diagnosed aged 6ys and wad considered too fit to need psychological support. However diagnosis of severe bilateral renal damage, being told id have problems having children and roughly managed by rather emitionally dim consultants left me isolated and repr...
- Thu Mar 16, 2017 6:29 pm
- Forum: The KPG Forum
- Topic: NKF (UK) Helpline & unsupervised volunteers - caution
- Replies: 8
- Views: 21314
Re: NKF (UK) Helpline & unsupervised volunteers - caution
Hi. Thanks for the reply. Ok maybe they did send the email but I've never every lost an email completely and they may have sent it to an incorrect email address. Surely then its common sense to nicely offer to resend it? No such luck. What is so worrying about this kind of behaviour and offhanded di...
- Thu Mar 16, 2017 7:53 am
- Forum: The KPG Forum
- Topic: NKF (UK) Helpline & unsupervised volunteers - caution
- Replies: 8
- Views: 21314
NKF (UK) Helpline & unsupervised volunteers - caution
I was shocked to find my mobile phone bill had shot up after just 2 phone calls on the NKF helpline. This really spurred me on to write to their CEO. I explained how I had received poor customer service when requesting figures for the amount collected in the raffle ticket sale e mails not arriving. ...
- Wed Oct 14, 2015 5:48 pm
- Forum: The KPG Forum
- Topic: Hi again Sometime since I logged in
- Replies: 3
- Views: 9710
Re: Publicity andon emotional effects of renal disease
Thanks Mathew for your response. it does go to show that the emotional response with some practical care really does make a huge difference. I suppose its a 1950s naivety to think of doctors as THE experts. Who would have thought that the NHS and doctors removing a lot of distress from parents could...
- Wed Oct 07, 2015 9:06 pm
- Forum: The KPG Forum
- Topic: Hi again Sometime since I logged in
- Replies: 3
- Views: 9710
Hi again Sometime since I logged in
Since I've been posting I've moved to Hampshire. Still struggling with a new sense of "normal". Its been a long road thinking about how my illness made me different from childhood, inspite of the fact that I hadn't reached stage 3 until I was in my 20s. It goes to show how much the emotion...
- Mon Mar 03, 2014 7:38 pm
- Forum: The KPG Forum
- Topic: Had a rough time? - will your renal unit makes things worse?
- Replies: 9
- Views: 16217
Had a rough time? - will your renal unit makes things worse?
Since 2006 I have felt very isolated and unsupported as a stage 5 renal patient. I kept recalling how my ex-husband used to yell at me and bang walls till they split, because the stress I felt as a renal patient. However he loved to discuss politics and wonder if I was "through with the Lord&qu...
- Tue Dec 17, 2013 12:46 pm
- Forum: The KPG Forum
- Topic: suggestion... how about introducing ourselves??
- Replies: 946
- Views: 2304099
Re: suggestion... how about introducing ourselves??
I am 58 years old and have one son now in his 30s. I live in Bristol and work in a call centre full time. On the renal side I was diagnosed aged 6 years and attended the renal unit for years. The psychological and emotional side was not addressed in my day, and I think still probably wouldn't be bec...
- Sun Dec 08, 2013 9:35 am
- Forum: The KPG Forum
- Topic: Hitchkicker's Guide to the Weird World of the NHS Complaints
- Replies: 4
- Views: 7610
Re: Hitchkicker's Guide to the Weird World of the NHS Compla
Yes, I do wonder if us Brits have problems with emotions. The main driving force behind the way I was dealt with was apparently I had upset his consultant emotionally and this was the main guiding light throughout and in his summary/ outcomes. If you talk about money you will be directed to the char...
- Sat Dec 07, 2013 6:14 pm
- Forum: The KPG Forum
- Topic: Hitchkicker's Guide to the Weird World of the NHS Complaints
- Replies: 4
- Views: 7610
Re: Hitchkicker's Guide to the Weird World of the NHS Compla
Apparently there are no subsequent meetings, even though at times I have felt extremely down. In fact when I had to bring up a complaint at work there were 2 furthing meetings. Tiring and frightening but eventually some progress was made but at least they won't be directly making me feel like not ha...
- Sat Dec 07, 2013 12:34 pm
- Forum: The KPG Forum
- Topic: Hitchkicker's Guide to the Weird World of the NHS Complaints
- Replies: 4
- Views: 7610
Hitchkicker's Guide to the Weird World of the NHS Complaints
I do hope that I don't put patients off making a complaint if they really feel they have to. Personally I would rather avoid making a complaint. However in the current finanancial environment complaints about how doctors made you feel ie non-medical, feelings aren't important and are dangerously reg...
- Tue Jul 16, 2013 12:02 pm
- Forum: The KPG Forum
- Topic: Post op nausea - meds for renal patients
- Replies: 2
- Views: 4265
Post op nausea - meds for renal patients
Ive had an op on my thumb, 45min anaesthetic. however 4 days later I am still tired and frequently nauseous. I was told there was reluctance to give meds to counteract this so have been soldiering on depressed and nauseous. Having had a rough time in the workplace, only getting SSP and all care supp...
- Tue Feb 19, 2013 10:49 pm
- Forum: The KPG Forum
- Topic: He who Dares Make a Complaint!!
- Replies: 6
- Views: 8745
He who Dares Make a Complaint!!
I am shocked at what I've been put through with making a complaint. I was escorted to a seminar room and was told only literally just less than 5 mins befrore the meeting that it would be recorded. I sat in a very large meeting room with the clinical head of the team opposite me and unit manger next...
- Thu Jan 10, 2013 1:31 am
- Forum: The KPG Forum
- Topic: Fed up and don't know where to turn, advice needed please
- Replies: 44
- Views: 61051
Re: Fed up and don't know where to turn, advice needed pleas
I got worried about Felodipine. I started to get stomach pains and acid reflux. The worst of it though that at the height of my fears, it was during the August bank holiday and I got batted between my GP and the renal unit. The GP wouldn't help and told me to go ring the renal unit. I rang the renal...
- Thu Jan 10, 2013 12:39 am
- Forum: The KPG Forum
- Topic: Local NKF representation
- Replies: 1
- Views: 3870
Local NKF representation
I have been really shocked that the local NKF seem to behave more like representatives of Clinicians rather than vulnerable patients and seems to be gossip shops about patients. I had some wild accusations that I was going to take a consultant complaint to the GMC, in fact the opposite was true, I w...
- Sat Oct 20, 2012 8:17 pm
- Forum: The KPG Forum
- Topic: Side effects af Renal Meds and Quality of Life issues
- Replies: 11
- Views: 29517
Re: Side effects af Renal Meds and Quality of Life issues
I am sure that such strong works getting exchanged is not a good standard way of communicating but when they aren't exchanged what they get up to behind my back is much more scarey! Getting emotional behind my back (that is when I was a kid), confiding in relatives or partners and yet weirdly bracin...